Our good friends Annie (Lowe) & Scott Green's son Nate was
recently diagnosed with SMARD (Spinal Muscular Atrophy with Respiratory Distress Type 1). It
is life-threatening disease that is caused by a gene mutation. It also
causes weak muscles and severe respiratory problems. Nate is
bright and happy, but has no use of his legs which makes it very difficult to
explore the world.
Nate needs a power wheelchair and wheelchair accessible van to help him leave the house. To help we organized a 40 mile bike ride to raise funds for Nate and SMARD research. The generosity and support from friends,
neighbors, and complete strangers was overwhelming!
To donate visit: http://fundly.com/smardy-pants-2012
3 comments:
wow. that is awesome you guys did that for them. what a beautiful little boy. i can't even imagine how hard that would be. way to go!
Nate is so cute! I feel sorry that he had to suffer SMARD. I’ll also pray for his recovery! Anyway, I hope Nate will overcome this life-threatening disease and be able to live a normal life. By the way, what happened to the fundraising event?
-Thomas Wright
Even with SMARD, your kid is still very adorable! As long as there’s smile on Nate’s face, you have nothing to worry about. I hope the event was a success!
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